Perinatal HIV Reporting Requirements for Illinois

The Perinatal HIV Prevention Act was most recently revised in 2017 with changes effective January 1, 2018. This is a summary of the reporting requirements for Illinois hospitals. All reporting must be done in compliance with the AIDS Confidentiality Act.

   Prenatal Providers Maternity Hospitals Non-Maternity Hospitals Pediatricians
Counsel pregnant women for HIV x X X  
Offer HIV testing to pregnant women as early in pregnancy as possible X X X  
Offer rapid HIV testing to pregnant women with no documented HIV status X X X  
Document results of HIV testing in the prenatal (and newborn) chart X X X  
Conduct repeat 3rd trimester HIV testing of pregnant women X X X  
Conduct mandatory rapid HIV testing of newborns without documented maternal HIV status from the 3rd trimester.   X X X
Call the 24/7 Illinois Perinatal HIV Hotline to report preliminary positive results of a rapid HIV test on a pregnant woman or newborn   X X X
Complete HIV confirmatory testing on preliminary positive rapid HIV tests X X X X
Complete the Preliminary Positive Case Reporting Form on a rapid HIV test with preliminary positive results   X X  

Report monthly aggregate statistics on pregnant women and tests

Birthing Hospitals
ED/Non-Birthing Hospitals

  X X  
Complete surveillance reporting of diagnosed HIV infection in an adult to the local health authority X X X  
Complete surveillance reporting of a case of HIV exposure in an infant to the local health authority   X X X (if applicable)
 

TELEPHONE REPORTING

1. Health care facilities must report a preliminary positive rapid HIV test in a delivering mother or her infant within 12 hours, but no later than 24 hours, of the test result to the 24/7 IL Perinatal HIV Hotline by calling 1-800-439-4079.

2. Health care facilities must report a preliminary positive rapid HIV test in a pregnant outpatient by calling the 24/7 IL Perinatal HIV Hotline at 1-800-439-4079 as soon as possible.

SPECIFIC REPORT FORMS (by fax or email)

3. Health care facilities must report monthly aggregate statistics to the Illinois Department of Health that include known positive pregnant women presenting for delivery, pregnant women rapidly tested for HIV, newborns rapidly tested for HIV and the number of preliminarily HIV-positive women and preliminarily HIV-exposed newborns. Click for the Perinatal Rapid HIV Testing Monthly Report for Illinois Birthing Hospitals and ED/Non-Birthing Hospitals.

4. Health care facilities must complete a Preliminary Positive Case Report for every preliminary positive HIV result in a mother or infant.

CONFIRMATORY TESTING (by telephone to the 24/7 Illinois Perinatal HIV Hotline):

5. Health care facilities reporting a preliminary HIV-positive test result must conduct HIV confirmatory testing and communicate the results of that confirmatory test to the 24/7 IL Perinatal HIV Hotline at 1-800-439-4079.

SURVEILLANCE REPORTING (by mail only):

6. Health care facilities caring for a pregnant or delivered woman who has been diagnosed HIV-positive by a rapid HIV test on labor and delivery or through prenatal HIV testing shall report a case of diagnosed HIV infection in an adult in accordance with the HIV/AIDS Registry Act and the Illinois Sexually Transmissible Disease Control Act.

7. Health care facilities caring for a newborn infant whose mother had been diagnosed HIV-positive prior to labor and delivery, or whose confirmatory test result is positive for HIV infection shall report a case of HIV exposure in an infant in accordance with the HIV/AIDS Registry Act, the Illinois Sexually Transmissible Disease Control Act and rules to be developed by the Department. If after 18 months from the date that the report was submitted, a newborn infant is determined not to have HIV or AIDS, the Department shall remove the newborn infant’s name from all reports, records, and/or files collected.

Case report forms for diagnosed HIV infection in adults and HIV exposure in an infant should be sent to the local health department that oversees the vicinity in which the patient resides. If the case is being reported by an out-of-state facility, forms should be sent to: Illinois Department of Public Health, Surveillance Section, Attn: Diane Jones, 525 W. Jefferson - First Floor, Springfield, IL 62761-0001.

***Hard copies of case reports can be sent through the U.S. mail. In order to protect the confidentiality of the individuals whose information is being mailed, case reports must be sent in double envelopes with the inside envelope clearly marked "Confidential" and "Open by Addressee Only". The mailing must be addressed specifically to an authorized person. The terms HIV and AIDS or any terms associated with HIV disease cannot be included in either the mailing address or return address on the envelopes.***

INCIDENT INVESTIGATION REPORTING: (by fax or email)

8. Health care facilities that do not conduct rapid HIV testing before delivery on a pregnant woman with undocumented HIV status or miss conducting mandatory rapid HIV testing on a newborn shall conduct an investigation into the case and submit an action plan to the Illinois Department of Public Health to address the deficiencies identified.

This page was last updated on the 12th of January, 2018