Reporting Requirements

The Perinatal HIV Prevention Act was most recently revised in 2007 with changes effective June 1, 2008. Below is a summary of the reporting requirements for Illinois hospitals. All reporting must be done in compliance with the AIDS Confidentiality Act.

TELEPHONE REPORTING (within 24 hours)

1. Health care facilities must report a preliminary positive rapid HIV test in a delivering mother or her infant within 24 hours of birth to the 24/7 Perinatal HIV Hotline by calling 1-800-439-4079.

2. Health care facilities must report a preliminary positive rapid HIV test in a pregnant outpatient by calling the 24/7 Perinatal HIV Hotline (1-800-439-4079) as soon as possible.

SPECIFIC REPORT FORMS (by fax or email)

3. Health care facilities must report monthly aggregate statistics to the Department that include known positive pregnant women presenting for delivery, pregnant women rapidly tested for HIV, newborns rapidly tested for HIV and the number of preliminarily HIV-positive women and preliminarily HIV-exposed newborns. Click here for the Monthly Data Collection Records for Illinois Birthing Hospitals and ED/Non-Birthing Hospitals

4. Health care facilities must complete a preliminary positive data report for every case of preliminary positive HIV result in a mother or infant. Click here for the Preliminary Positive Case Reporting Form.

CONFIRMATORY TESTING (by telephone to the hotline):

5. Health care facilities reporting a preliminary HIV-positive test result must conduct Western Blot confirmatory testing and communicate the results of that confirmatory result by telephone to the 24/7 Illinois Perinatal HIV Hotline.

SURVEILLANCE REPORTING (by mail):

6. Health care facilities caring for a pregnant or delivered woman who has been diagnosed HIV-positive by a rapid HIV test on labor and delivery or through prenatal HIV testing shall report a case of diagnosed HIV infection in an adult in accordance with the HIV/AIDS Registry Act and the Illinois Sexually Transmissible Disease Control Act.

7. Health care facilities caring for a newborn infant whose mother had been diagnosed HIV-positive prior to labor and delivery, or whose confirmatory test result is positive for HIV infection shall report a case of HIV exposure in an infant in accordance with the HIV/AIDS Registry Act, the Illinois Sexually Transmissible Disease Control Act and rules to be developed by the Department. If after 18 months from the date that the report was submitted, a newborn infant is determined not to have HIV or AIDS, the Department shall remove the newborn infant’s name from all reports, records, and/or files collected.

Case report forms for diagnosed HIV infection in adults and HIV exposure in an infant should be sent to the county health department in which the case was identified. For a list of HIV surveillance representatives, click here. If the case is being reported by an out-of-state facility, forms should be sent to: Illinois Department of Public Health, Surveillance Section, Attn: Diane Jones, 525 W. Jefferson - First Floor, Springfield, IL 62761-0001.

***Hard copies of case reports can be sent through the U.S. mail. In order to protect the confidentiality of the individuals whose information is being mailed, case reports must be sent in double envelopes with the inside envelope clearly marked "Confidential" and "Open by Addressee Only". The mailing must be addressed specifically to an authorized person. The terms HIV and AIDS or any terms associated with HIV disease cannot be included in either the mailing address or return address on the envelopes.***

INCIDENT INVESTIGATION REPORTING: (by fax or email)

8. Health care facilities that do not conduct rapid HIV testing before delivery on a pregnant woman with undocumented HIV status or miss conducting mandatory rapid HIV testing on a newborn shall conduct an investigation into the case and submit an action plan to the Department to address the deficiencies identified.

This page was last updated on the 9th of December, 2009