FAQs

The Pediatric AIDS Chicago Prevention Initiative (PACPI) offers enhanced perinatal HIV case management services to Illinois women requiring extra support. An enhanced case manager can work with you to link your client to a variety of services. PACPI case managers are available through the 24/7 Illinois Perinatal HIV Hotline at 1-800-439-4079.

Twenty-four hours a day, seven days a week expert, up-to-date, real-time consultation on each individual case is available to assure that all clinical and social issues are addressed for each patient with a preliminary positive result. The intent of the legislation requiring the call is to ensure that experienced case management helps the woman and her family with this information in the very vulnerable time between receipt of the rapid result and receipt of the confirmatory HIV test result. Oftentimes, case management can also provide a home visit and help ensure the return visit to the hospital or clinic to receive the confirmatory results. Hotline staff work with hospitals and providers as a team to make clinical decisions, connect patients with case management, and assure appropriate follow up.

The case manager will meet with the staff that called the Illinois Perinatal HIV Hotline to report the preliminary positive test result and inquire about any particular issues of concern for either staff or the client. The case manager will then request to meet with the client privately (away from family) to discuss options. With permission, the case manager will meet with the family with the goal of stabilizing the situation. Before leaving the hospital, the case manager will update staff on any plans and referrals that might be in process for the client.

Breastfeeding is strongly discouraged in the United States and other developed countries as this significantly increases the risk of vertical transmission. Exclusive formula feeding is recommended. Counseling of the mother ahead of time about this is preferred.

The case work is completed and the client is referred to the appropriate follow-up services for HIV negative women. The clients are assisted with finding a pediatrician, where to go for benefits (WIC, KidCare) and the case may be transferred to a DHS Family Case Manager where appropriate.

Enhanced case management is intensive case management. It is a field-based service where the case manager brings the services to the client. Enhanced case management is often targeted at especially vulnerable populations, like pregnant women, bringing the case management to their homes and their neighborhoods.

The Hotline provides information about the most up-to-date treatments for pregnant HIV-positive women and newborns. This includes medical consultation on HIV related obstetric and pediatric issues.

Traditional case management usually occurs in the case manager’s office, requiring the client to make and keep appointments. Enhanced case management occurs in the field. Case loads for enhanced case managers are small. They usually have one-quarter to one-half of the number of clients that a traditional case manager has. In enhanced case management, the visits are longer and clients usually require more hands on assistance in the field such as escort to appointments, linkage to specialized medical care, outreach and home visits.

Yes, antiretroviral therapy is currently recommended for all individuals living with HIV to reduce the risk of disease progression and to prevent HIV sexual transmission. Additionally, antiretroviral therapy postpartum is also important to help the woman maintain viral suppression prior to subsequent pregnancies.

The Hotline can assist providers in interpreting HIV test results and can offer recommendations for additional testing and care.

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